Wednesday, October 19, 2011

Hello World!!!

 By writting this blog I hope to raise more awareness for Dysautonomia and if I can help one person who is also dealing with this debilitating illness then I will be happy. If you would like to know a little more about me and what I have been diagnosed with please vist my about me page.

I decided to name my blog and well as my website My INVISIBLE Sickness because many people seem to think a person can not be sick if they don't look sick. Many doctors have NO CLUE what Dsyautonomia even is. The lack of awareness and study in this area really annoys me. Yes, it is rare but so many people struggle with Dsyautonomia that there should be more research being done.


After dealing with the symptoms of POTS and being told lord know how many times that "It's All In Your Head." I was finally diganosed with Postural Orthostatic Tacycardia Syndrome 8months ago. My symptoms have been getting worse and I am happy to say that I will be seeing a specialist in 2 more weeks, Dr.Amer Suleman in Texas. Hopefully I will have some anwsers and will recieve the treatment that I so desperately need. I have not found out my reason for having the illness and I am still looking.


Today has not been a good day at all. On top of my pots symptoms I have been having excrutating pain in my right knee,thigh,and hip. After dealing with the pain  for 1 week and 3 days I decided to go see my GP. They took x-rays and he diagnosed me with bursitis(OUCH) thank you for the added diagnoses and pills. I currently take 11 different meds and even though I am worried about my liver, when I take my meds I feel as though I can function at least half way right. With everything else I  have I now been diagnosed with Bursitis. I am only 24 and I feel older than my age. I am dealing with illnesses that most people deal with when they are older.


If  you have any questions or comments please feel free to contact me.


Also please vist and support my personal website which has more information about Dysautonomia and POTS
http://www.myinvisiblesickness.com/

1 comment:

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